‘Sister Wives’ Maddie Brown Brush opens up about daughter’s rare genetic disorder

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Maddie Brown Brush’s ultrasound at 28 weeks did not go based on plan and the fact TV star felt one thing was unsuitable immediately.

The “Sister Wives” forged member recalled the physician asking to talk together with her in his workplace after a two-hour appointment.

“It normally takes about 45 minutes, however the physician simply saved trying and looking out,” the 23-year-old informed Individuals journal. “I used to be stressing out the entire time.”

He then informed her that he could not discover all her daughter’s fingers.

CALIFORNIA INFANT DIAGNOSED WITH INCREDIBLY RARE, INCURABLE GENETIC DISORDER

At the moment, the unborn child was identified with oligodactyly — a congenital situation the place all 5 fingers don’t develop on one hand.

“There have been a number of feelings,” she says, “however I used to be additionally relieved as a result of there may have been an entire lot extra unsuitable.”

She and her husband, Caleb Brush, welcomed Evangalynn Kodi on Aug. 20. It was then decided she was born with no thumb and a toe, two fingers have been fused collectively, considered one of her legs didn’t develop a fibula (calf bone) and she or he had a bowed tibia (shinbone).

“We have been shocked,” Brown Brush stated. “I used to be simply sitting there making an attempt to grasp what’s happening, having simply had a child as they’re bringing in all these specialists. I used to be freaking out.”

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They’re additionally dad and mom to 2-year-old son Axel James, who doesn’t have any issues.

The ultimate analysis for Evangalynn was fibular aplasia, tibial campomelia and oligosyndactyly (FATCO) syndrome, which is a really uncommon genetic dysfunction that impacts bone development within the uterus.

“We have been hesitant to share Evie’s situation publicly for worry that our toddler daughter would grow to be the goal of imply jokes and cyberbullying,” Brown Brush wrote on social media.

“That stated, we felt not being open could be even worse and make Evie really feel ashamed for one thing that makes her all of the extra particular in our eyes… So far as we have now been informed, with fewer than 10 recorded circumstances of her particular findings, it’s unclear what causes the situation.”

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“She is wholesome in each different method other than the lacking bones. As a household, we have now determined to be open as we stroll via this journey. We wish Evie to at all times really feel delight in who she is, and all that God gave her!” the proud mom concluded.

The household will wait till Evie is 1 12 months outdated to find out the following plan of action, together with contemplating surgical procedure or amputation.

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